Friday, August 10, 2007

4 years cancer free

4 years ago i found a knot in my right chest wall. i wasn't worried but i should have been. i had a lumpectomy that revealed malignant cancer..next they tried a quadrilectomy (removing one fourth of the breast)but that procedure still didn't get it all. the cancer was identified as an invasive lobular malignancy - stage 3 which is quite advanced. so after the initial two surgeries which weren't effective, i had to have a full mastectomy. i also had some lymph nodes from my armpit removed to determone if the cancer had spread beyond the breast to the lymph nodes. i wasn't worried but i should have been. the results came back positive for cancer. it had spread to my lymph system which is very bad news. the pathology report indicated widespread infestation of the invasive lobular cancer (one of the most dangerous and aggressive types)5-7 cm in diameter. this news was bad in every way. my statistical chances of surviving were poor. i had the other breast removed because of suspicious tissue found in it. i had a chemotherapy port put in my left chest wall so the strong chemo regimen wouldn't destroy my vascular system. i had to have heart tests to determine if my heart could withstand the powerful chemo drugs they planned to use. my chemo cocktail was the most toxic, aggressive type used (ACT). the A drug is referred to as the red devil because it is so toxic - my chemo nurses wore thick rubber gloves when injecting it into me. i received the treatment every three weeks for 7 mos. all of my hair fell out on the 13th day. after each treatment i would have 2 or 3 very sick days, followed by a week of feeling like i had the flu, followed by a week of feeling okay. then the process was repeated all over again. i developed sores in my mouth and damage to my cornea (eyes). i lost my eyebrows and lashes and had bruised fingernails and very dry skin. because my cancer was estrogen responsive, i had to have a complete hysterectomy (cervix,uterus,ovaries) and i can never take estrogen supplementation because it feeds the cancer cells. so i continually endure cold turkey surgical menopause which according to doctors is ten times worse than regular menopause. i am always hot - have gained weight in weird places - all kinds of strange symptoms. my chemo nurse was an angel from heaven. she prayed for me before every treatment, asking God to protect my good cells while killing the cancer cells (thank you missy). a friend had a thoughtful gift waiting for me at every chemo appointment. those gifts were such a blessing to me (thank you amy). and hundreds of people prayed for me and sent me cards and helped me in many ways, from cooking meals for my family to painting my not so white picket fence (thank you friends).
cancer was a blessing. my life slowed down to a point where i could get a grip on it. i began to truly enjoy life - every minute of it. i learned to play guitar, paint, and improved my photography skills. i learned to never postpone joy. i am grateful for friends who were willing to "waste time" with me. i am thankful for the invaluable life lessons i learned.
next year will be 5 years!
God has been with me every step of the way.
My true friends have stood beside me through the physical and emotional pain.

my hair began to grow back 3 months after my last chemo treatment. it came in wiry and dark - so i dyed it blonde.
my bout with cancer made me closer to the person God has always intended me to be.

13 comments:

Dennis Bullock said...

You are a special person Jaki and God has a reason for everything. Bless you and you family.

Cindi said...

wow. i knew you were a breast cancer survivor, but i had no idea how close the world came to losing such a beautiful soul and talented woman. reading your story has slapped me around a little and this whole self-pity thing i have going now. a story like yours puts life for the rest of us in perspective. you have so much to teach us. perhaps that is the biggest reason you are here...

Anonymous said...

Oh Jaki,
You make my eyes misty. My heart had forgotten about all of that sadness. I feel extra blessed today to remember all of the good times that we have had. Broadway, museaums, parties, and worship wouldn't have been the same without you. Thank you for fighting.

anna said...

i remember you walking into church looking much like that picture and i bawled. i couldn't believe how GORGEOUS you looked.
i said "WOW, I want to be like Jaki"


so yes, thank you for fighting.

nancyt said...

I know you are the best testimonial to God. You are so important to so many lives-you have no idea. I thank God everyday you are my very best friend and I pray for your continued health. I am the luckiest person to be able to work with you and touch so many little lives!

lauren. said...

you are amazing jaki.

Tersie said...

Jaki,

You are so beautiful. You have so much more beauty than the photos that capture your outer beauty can ever touch. It radiates from within. I am so thankful (and thank God) for the chance to know you.

Love you!
Theresa

Sarah said...
This comment has been removed by the author.
Anonymous said...

Jaki! You ARE Amazing! Short hair dyed blonde, cancer in your body, and still a smile on your face and I gleam in your eyes that says I will fight! I had a bad day the other day and I read your blog and I became so thankful. Thank you for being an example...a light!

julie p said...

i will never forget one of the things you told me when the bad news kept coming...."How will others latch on to my story of faith when they have troubles all around and my life is smooth sailing? Maybe now it will be easier to make believers from those around me who know I can relate to going through hard times."

Now THAT is outward-focused....wow, you amaze me. i love you, jaki.

ESnod said...

Jaki,

I feel so blessed to know you. You are such an amazing and beautiful person. It is infectious. I am so glad you are a fighter. Our world is a better place because you are in it!!!!

Love ya - Erica

Glenda said...

It shows your worth when you're going through a life crisis, and you're still the one to bring comfort and hope to your friends. Easy to see why God chooses you to touch and inspire others. You are an amazing woman.

Pastor Tim said...

I ran across your blog on the Flickr pages. And so enjoyed your writings. The Father has really gifted you in such a unique way, to transmit your thoughts, and feelings to paper, to influence those around you. He has such a unique plan for your life, but then you already are aware of that.
Thank you so much for sharing your fotos, your story. I pray His blessing even moreso into your life.

My life mirrors that of yours in the way that I too am a survivor. Mine was a cerebral anneurysm. (1986) I was not suppose to live. But here I am 21 years later.My father was also a man of immeasurable faith. He died in 2000.